Orange is the New Gold

Sunday November 3 was the coldest Sunday since spring had sprung some 7 months earlier. And what was I getting ready for at 6:30 that morning? I was going for a walk, a Kidney Walk at of all places, the Pittsburgh Zoo.
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This particular Sunday stroll was in support of the National Kidney Foundation, and organization in support of kidney disease education, treatment, and support. Like so many other disease focused organizations, money raised by the NKF goes to research for treatment and to find a cure for kidney disease. But it also provides direct assistance to those suffering the disease right now by assisting patients, families, and caregivers through resources including health checks and screenings, drug discount programs, and peer support made possible by fundraising activities.
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Since I had begun chronic dialysis 3 years ago I recieved helped from the National Kidney Foundation but was never able to show my support for the organization. For the first time since my diagnosis my entire immediate family was able to register for the walk. The Kidney Walk does not carry an “entrance fee” nor a “suggested donation.” Your entry fee is your willingness to show support. Your donation is what you want to give or can raise from friends and family to support your personal cause. This year 2300 Pittsburgh walkers raised over $255,000 for those causes and I’m happy to report that my family was responsible for one of those thousands. Walkers included kidney transplant recipients, kidney donors, dialysis patients, care providers, and those many friends and family members on foot, in wheelchairs and strollers, with the help of canes and walkers, and even physically carried by others.
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Unlike many others walking I was diagnosed without any of the classic risk factors or warning signs. The major risk factors for kidney disease are high blood pressure and diabetes; family history and obesity are also major contributors to that risk. Some of the common early warning signs include nausea and vomiting, irregular heartbeats, pain in the lower back, and shortness of breath. I had and still have none of those. My kidney disease is caused by complications from an autoimmune disease and was revealed through routine lab studies at regular checkups. Like many walkers I doubted I would ever find myself relying on dialysis for life or undergoing a kidney transplant. And most unfortunately like many other walkers I found myself both of those. Most fortunately though, my disease was discovered and I was able to join in the walk.
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Orange was the color of the day at the zoo. Although kidney disease awareness is typically represented by a green ribbon, the National Kidney Foundation has adopted orange and black as the organization colors. Orange shirts, hoodies, caps, backpacks, and even baby strollers marched on a three mile trek among the animals at the Pittsburgh Zoo to bring awareness to chronic kidney disease, a disease that affects nearly 40 million American adults with another 200,000 diagnosed each year.  Over 800,000 of those patient are in end stage renal failure requiring dialysis or a kidney transplant.
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To us it doesn’t matter what color was worn. The money raised is the gold at the end of the rainbow. 
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Customer Disservice

Last night, actually early (VERY early) this morning, I was watching a blank TV screen in bed. It was the best thing I could get. When the screen wasn’t blank I had a message from the cable company that read “Something has gone wrong. Please unplug your box for ten seconds then plug it back in. When the signal returns, you can begin watching your show again.” Now that’s a polite message for a cable company. It was also a big fat lie.

About a month ago I had a semi-similar problem. I had to upgrade the type of set top box I had been using so I had them ship me a replacement for a self-install. Even after carefully following the directions I couldn’t get the thing to work. A call to the support center revealed that they couldn‘t get the thing to work either. But not for trying. I was on the phone with them for about 35 minutes while the technician sent a variety of reset signals, check error codes and ping-backs, and generally did what she could to correct my problem from a distance. It didn’t happen. After apologizing for her inability to get the box working and for making me wait so long, she arranged for a technician to come out the next day and replace the box with a new one. I was also issued a credit for being inconvenienced by the lack of service for a day.

Last night’s technician could have used some guidance from the previous encounter. After confirming my name, phone, address, social security number, mother’s maiden name, length of great toe on my left foot, and the winner of the Academy Award for best adapted screenplay of 1962 (To Kill a Mockingbird) she began her diagnostic check. First she told me to unplug my set top box for 10 seconds then plug it back in. As we waited for it to reset she told me that when the signal returns I could continue to watch my show. (Yes, I thought it sounded familiar also.)  Eventually the screen replayed the same message. “Well,” she said, “I’m stumped. Let’s set up a service appointment for you. Our next opening is next January 6 at 4:30.” Yes, that January 6. Sheesh. “Thank you for calling.”

Within minutes I received an e-mail confirming the appointment and noting that I will be charged a $50 service fee my next bill. I will be calling customer service later this morning.

Sheesh. Again.

That’s what I think. Really. How ‘bout you?