I Wish I May…

You’ve seen them. Perhaps a newspaper feature article on a local 100 year old, or a minor celebrity suddenly experiencing the harder side of life after having been diagnosed with an incurable (or even a curable) disease, or maybe even an ad for a home care agency home hospice program. What is it that that you’ve seen or heard or read? That earnest looking and sounding unfortunate soul baring his or her life to the camera, reporter, microphone, or ad agency saying “my one last wish, my most hopeful dream, the one thing I’m most looking forward to, is dying in my own bed. It’s what keeps me going.” Well I’ll tell you right now, if you ever hear me utter such nonsense just shoot me where I stand. Unless I’m standing in my own home, then take me across the street or at least out back first.

How bad does your life have to be that the only thing you’re looking forward to, the one thing you want most out of that life, your biggest dream for yourself, is to be dead. Yes, when you die in your own home you end up dead. Something we all realize we will someday be but something most people would not aspire to, brain-addled suicide bombers notwithstanding.

I don’t know what I want most out of my life. I know what I want out of my life most but those aren’t the same thing. My biggest dream probably depends on what’s annoying me most on a particular day. Too many therapists, too many phone calls, and way behind on sweepstakes entries – I dream of the solitude of an uninhabited (except for me, select guest(s), and a killer bartender) island. Too many healthy meals too many days in a row – pizza from a pizza shop known for as many toppings (please, pineapple is not a pizza topping under any circumstance) as one can humanly get to stay on a pizza crust.

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Not only does “die in my own bed” sound way too dramatic for the average Jo or Joe, it’s quite unfair to those who share that home or are expecting to have it on the real estate market next week. Dying in life (I’m not sure how else to phrase that) isn’t like dying in the movies. Most people don’t smile, say goodbye to the assembled group of friends and family, then nod off just as the last relative passes by. There are noises, smells, and often a lot of movement before and after the fact. There’s cleaning up to do and people to call like in the absence of home hospice, 911. I’d rather have understaffed nursing personnel handle the dirty details or more frankly the cleaning detail, than a loved family member. Of course if you are really annoyed at your family that day, well, who am I to judge?

If someone was to put a gun to my head and say I must come up with my one greatest wish or I’d get it right there I’d probably say to live at least one more day. It seems so much more wish worthy. I wonder if under the same circumstances those with that burning desire to die in their own beds would as calmly as they could, tell the gunman, “So, can you drive me home first?”

And now, the start of the story…

Let me start right out of the gate and say this post is going to be a little different. Not much humor, useless trivia, or sarcasm in this one. Depending on how long you’ve been following this story you might know that a couple of years ago life was interrupted by a bout with cancer. It seems that for so many today, cancer is just an interruption. Cancer strikes this celebrity, that athlete, or this actor and they recover, return to their former lives with an even greater performance, voice, or achievement.  For me, cancer was maybe more than an interruption. But one thing it was for sure, it was inevitable.

Fifteen years ago I was diagnosed with one of the rarer immune system abnormalities. Not one of the many rheumatoid conditions that today have so many wonderful drugs advertised on TV so you can get back to golf, fancy restaurants, delightful carnivals, volunteer work, or unashamed workouts from high energy spin classes to meditative yoga. Nope, the one I got wasn’t even in researchers’ microscopes looking for a sometime-in-the-future remedy. Treatment for me meant high doses of prednisone and immunosuppressive agents once used in the early fight against cancer. I knew from the start that over several years the treatments themselves could cause problems like renal failure, heart failure, liver failure, or the cancers they were initially developed to treat. I also knew from the start that left untreated, over several months my condition could cause problems like death and dying.

I chose Door Number One.

Then three years ago I found out I had cancer. I knew that I most likely wouldn’t come out of it with an even greater performance, voice, or achievement. For me it wasn’t that one thing I had to overcome. It was just another thing in the yet increasing number of things that had happened, and will continue to happen to me.

Over the years I’ve had so many pieces of me removed, replaced, or rebuilt that I could give Lee Majors a strong run for the Six Million Dollar Man title role.  Over the years it’s gotten harder to say if the latest ache, pain, or procedure is due to the condition or the cure. Last week I spent a day in an outpatient surgery unit having an artery and vein in my right arm tied together to form an entry and exit site necessary for dialysis. It was inevitable and got me thinking about that cancer diagnosis from three years ago.

By then I had already been given about a dozen extra years since choosing Door Number One. In those 12 years I had gotten to see my daughter graduate high school and college and discovered the difference between being a father and being Dad. I had met new people who I would never forget who before I could never have ever imagined. I had earned national recognition in a field that itself is rarely recognized. I had earned about a million dollars, spent about a million and a half, and probably would do it the same way all over again.

The more I think of it, the more I think how lucky I am to have gotten to that cancer diagnosis. I got to hear a doctor tell me that I had a potentially terminal condition long before I had cancer. By the time I heard a doctor tell me “You have cancer,” (though more delicately than that) I had 12 years that I wouldn’t have had if I had chosen the path that didn’t include the possibility that treatment might cause cancer.

I wish everyone who ever has to hear a doctor say “You have cancer,” (hopefully more delicately than that) all the best things that life has in store for you. And although I can’t argue that having cancer is ever one of the best things that life has in store for you, there really are some things worse than having cancer. Sometimes, even not having it can be worse.

That’s what I think. Really. How ‘bout you?